KOGI STATE POLYTECHNIC RECTOR SON’S USMAN SHAMSUDEEN LAUNCHES HIS SICKLE CELL FOUNDATION: A JOURNEY OF COURAGE, HOPE, AND ADVOCACY
By Bamidele Gbekele Iyanu
In an inspiring event that marked a significant milestone in his life, Usman Shamsudeen, a young sickle cell warrior, unveiled his Sickle Cell Foundation, a venture dedicated to raising awareness and providing support for individuals battling sickle cell disease. The ceremony, attended by family, friends, and supporters, served as a powerful reminder of resilience, the importance of community support, and the impact of advocacy on health issues often misunderstood or overlooked.
A Journey Defined by Resilience
Usman’s journey began with a life-altering diagnosis at a young age. Born in May 2010, his first few months of life were filled with joy and hope, but at just six months old, he began experiencing persistent health issues that puzzled his parents. A grand celebration for his first birthday was followed by a period of acute illness, where he experienced swelling in his limbs—a painful marker that would soon lead to the diagnosis of sickle cell disease. Reflecting on this time, Usman recounted how his parents were devastated, yet undeterred, as his father made a vow to dedicate himself to ensuring that Usman received the best care possible.
In his speech, Usman shared his experience of living with sickle cell disease, describing it as a life punctuated by severe pain and moments of vulnerability. “The pain caused by sickle cell crises,” he explained, “has been one of my most difficult struggles.” For him, episodes of acute chest syndrome, sometimes escalating to pneumonia, have been the most physically taxing and emotionally trying aspects of the illness. Living with the disease also meant learning to navigate environmental challenges, where both extreme heat and cold could easily lead to crises, making each season a delicate balance between activity and rest.
A Bright Student with a Dream to Heal
Despite these health challenges, Usman’s educational journey has been a source of joy and accomplishment. Gifted with intelligence and a passion for learning, he has excelled academically and found particular inspiration in the subject of Biology, fueling his dream of one day becoming a neurosurgeon. “My goal is to specialize in neurosurgery,” he shared, showing a determination to not only overcome his challenges but also to help others facing their own.
Guidance, Inspiration, and Gratitude
Usman expressed heartfelt gratitude to the mentors and role models who have encouraged him along the way, highlighting former Kaduna State governors Ahmad Makarfi and Nasir El-Rufai as individuals whose resilience and commitment have shaped his own aspirations. However, it is his family, particularly his parents, who have been his unwavering support system and greatest source of strength.
“To my father, Prof. (Chief) Usman Salisu Ogbo, you have been my hero, my confidant, and my pillar,” he said. In his words, he recognized his father’s love, sacrifices, and dedication, expressing his pride in being his son. He also paid tribute to his mother, Hajiya Hanatu Usman Ogbo, whose selflessness and unyielding support have helped him face each day with courage. “Mom,” he said, “thank you for standing by me through sleepless nights, and for putting my needs above your own. I am incredibly proud to be your son.”
The Sickle Cell Foundation: A New Chapter of Advocacy and Support
The unveiling of the Sickle Cell Foundation marked a defining chapter in Usman’s journey, one that signifies not only his resilience but also his desire to create a brighter future for others affected by sickle cell disease. Usman explained that his foundation would serve as a platform to raise awareness, provide resources, and create a support network for sickle cell warriors and their families. “Today,” he shared, “is a milestone in my life as we unveil the Sickle Cell Foundation. This foundation represents not only my journey but the journey of countless warriors who face this illness daily.”
A Call for Support
In closing, Usman called on everyone present to contribute to the cause, underscoring the impact that even small gestures of support can have on the lives of individuals facing the daily battles of sickle cell disease. “I invite you all to donate generously to the success of this cause,” he appealed, reminding everyone that the foundation’s mission would thrive on the collective effort of the community.
The event concluded with a sense of optimism, as Usman’s story inspired everyone in attendance to be more aware, more compassionate, and more committed to supporting those living with sickle cell disease. Through his foundation, Usman Shamsudeen aims to foster hope, promote understanding, and, above all, empower individuals to live full, courageous lives, despite the challenges they may face.
picture of the warriors
